Unfortunately the nurse insisted that it was Viral in her enthusiasm for preserving the global effectiveness of antibiotics. Fortunately Lavinia convinced the rotor to give me a pack of antibiotics just in case (nominally to treat my infected fingers), assisted by my briefly breaking down with sheer frustration at the nurse’s intransigence!
To Hell and Back!
It’s been a crazy week: Dealing with a throat infection (been disease-free so far, apart from the Cancer), having my hair tidied at home by lovely Jeanette (who has cut my hair for decades) after the radiotherapy hair loss (less of the “mad professor” look now, and Wow! so that’s the shape of my head).
Friday night was the date of the annual Lab reunion, “The STL Quarter Century Club”, which was once just for those fortunate enough to have spent 25 exciting years at Standard Telecommunication Laboratories in Harlow, Essex, UK. Fortunately the event is now open to absolutely anyone who at one time enjoyed working there.
From the age of 21, I spent 38 happy years of my life at the Labs, developing Optical Fibre Communication (“retiring” at the end of 2004 to focus on my new passion: the implications of the incredibly limited rate at which humans can absorb New information from the present moment). So when my rapidly developing tumour was first diagnosed (end June, and biopsied end July), I did not dare to anticipate being able attend the event.
So on Saturday night I got smartly dressed, put on my STL QCC tie! and spent a delightful evening mixing with all my ex colleagues. It felt a great way to celebrate the end of an exraordinarilly exciting (and with hindsight productive) period of my life.
So home to bed, and down into into Hell!
The Steroids and the anticoagulant injections, make me prone to nosebleeds. At midnight the blood was just pouring out so fast that I dare not lay down, so stayed sitting upright in the cold for the next 5 Hours, bleeding heavily and continuously despite all my attempts to stem the flow. Finally I accepted defeat and my dearest Lavinia managed to get me dressed to take me to Harlow hosital A&E.
We naively assumed that A&E departments are always very warm, so I staggered out to the car in the dark, only to find the car completely frosted up! The temperature was 10 degrees colder than anticipated, but too late to correct my attire, we needed to press on, this was an emergency!
Arriving at Harlow hospital, it soon became apparent that the entire reception area was unheated, due to the unanticipated sudden drop in temperature. After a few hours of hypothermia Lavinia managed to negotiate for me to sit inside where it was considerably warmer.
By chance the wife of one of my ex work colleagues (who had sat on my table the night before) who works as a nurse there, had spotted my name on a list of patients waiting to be seen. She found some extra blankets for me and I was soon sweating with relief!
Five hours later I got to see a doctor. By then the bleeding had become far more intermittent. The doctor prescribed some mysterious magic ointment, and we set off home.
Exhausted from 35 hours without sleep, I fell into bed, and into a deep sleep for the next glorious 6 hours. For someone used to waking every hour and a half to pee, this was absolute luxury! Woke very much refreshed, and started to blog!
I want to say just how much I depend on Lavinias support to get me through these times. She must be exhausted from being continually at my beck and call. I’m humbled by her Love and her patience with me.
Cafe Scientifique
At the end of 2004 we launched a local Cafe Scientifique in Bishop’s Stortford, and ran it for the next 6 years. Missed the last few events but managed to get along to Monday’s latest fascinating talk on “What has the Antarctic ozone hole to do with evolution?”, by: prof. Michael E. McIntyre. Nice explanation of the jet-stream mechanism.
Big day – “final” review
Today I had my “final” review at Addenbrooke’s Hospital Cambridge, six weeks since the end of my 6 radiotherapy sessions. I invited son Paul & daughter Mary to join Lavinia and myself, so they would be party to any decisions.
A great session. The consultant answered all my questions in great detail. I confirmed that I have no interest in having a further scan to observe progress, as the only treatment option would be chemo, which I have no interest in as I want to maximise my quality of life in my remaining time. So having made a future phone appointment, I will have no further need to travel to Addenbrooke’s again.
The consultant generously offered to show my last MRI scans to Paul & Mary, explaining in some detail how my glioblastoma multiforme extends between the two main tumour focii. To my surprise, she revealed two pockets of air, created when both focii were biopsied.
I was so delighted with the quality of answers that I blurted out: “Brilliant!”, at which point Mary laughed and said “Only my Dad would consider his current situation to be “brilliant”. This caused hysterical laughter which almost let me to tears, a hilariously funny moment. I think the clarity of my situation is what helps.
After a quick check on my blood sugar, Paul drove us all home. Lavinia’s son and girlfriend arrived back from a week’s holiday, so we had quite a family gathering, followed by a delicious Takeaway.
Cruisin’
Thanks to everyone who made today’s 4 hour cruise on the River Stort possible today. Wonderful day with delicious food and warm friends (and sunshine!).

All courtesy of:
Home – Canal Boat Holidays and Day Trips for People with Disabilities
Problem getting out of chairs
Just acquired a tilting chair, Brilliant!