Later today we will confirm the identity of my hitch-hiker

During my afternoon appointment with the consultant at Addenbrooke’s Hospital later today, I am expecting the results of my biopsis, with a prognosis. By chance a package arrived at home yesterday with a CD of the last MRI scan prior to the biopsy. I had requested this (£10 only, thanks NHS), as I knew that the new scan offered higher spatial resolution than the earlier one at Rivers hospital, and might also give some indication of tumour progression.

To my surprise the CD of “interesting” images came with a radiological report, the last line of which stated: “Progression of two enhancing lesions in the left frontal lobe, most likely multifocal glioblastoma”. So, remember that this is before the biopsy results, but it now seems that Senator McCain and I might have something in common, (not a lot!). It also suggests that rumours of a third tumour site were exaggerated.

So what do we know about my new running mate(s)? Well it would suggest they are both parts of a single linked but distributed tumour, i.e. they are both part of the same growth. The good news is that this cancer is usually confined to the brain, so if confirmed, I should not expect to have the rest of my body invaded by the “body snatchers”!

Now keeping in mind my lifetime mantra that “no-one gets out of here alive”, what might be the prognosis for my life expectancy?

“The most common length of survival following diagnosis is 12 to 15 months, with fewer than 3% to 5% of people surviving longer than five years. Without treatment, survival is typically three months. It is the most common cancer that begins within the brain and the second most common brain tumor, after meningioma. About 3 per 100,000 people develop the disease a year. It most often begins around 64 years of age and occurs more commonly in males than females” – Wikipedia

Other information: “Primary glioblastoma tends to occur in older adults (> 50 years) and appear quite suddenly (less than 3 months from initial symptoms to diagnosis)”. “Patients treated with this standard therapy tend to survive for approximately 12 months. Without treatment, survival is about 3 months.”

So now I’m looking forward to the actual biopsy result, plus a treatment plan going forward. Life is still rich, and increasingly precious.

 

My Situation

On July 3rd I was diagnosed with tumours in my brain. A Biopsy at Addenbrooke’s Hospital Cambridge revealed that I have a single glioblastoma multiforme. With radiotherapy treatment the mean life expectancy is estimated to be “6 to 9 months”.

Called back to Addenbrooke’s hospital today for a repeat blood test as low platelet count discovered in Tuesdays sample (result now confirmed). Admission now will be Sunday for transfusion, and op on Monday.

Met my surgeon to discuss action based on results of Tuesday’s higher resolution MRI scan. This has revealed 3 tumours, (and suggests it might be a single more distributed tumour). To minimise the risk to my Motor Cortex, he will not touch No.1 tumour, but will instead biopsy the second one, as this is easier to access. I might be out on Tuesday evening.

I’m very impressed with the professionalism of all we have encountered.

A couple of folk have suggested that I’m being courageous. However my current lack of fear means that I haven’t had to find out yet.

Appointments at Addenbrooke’s Hospital Cambridge today for high resolution MRI scan, and for pre-op tests. What a wonderful professional hospital and staff. NHS crisis? What crisis!

Awaking today exactly a week to go before my brain surgery at Addenbrooke’s Hospital in Cambridge, I found myself reflecting on my calmness when my tumours were revealed in my cranial MRI Scan just a few week’s ago.

While awaiting the scan results, I sat and re-read the last chapter of “Don’t Sleep, There are Snakes: Life and Language in the Amazonian Jungle” by Daniel Everett, in which he describes his journey into the Amazon as an evangelistic missionary to translate the Bible into the language of the Pirahã tribe, and ultimately lost his religion.

He found “the happiest tribe on Earth” who had no interest in things outside their immediate experience, so had no need of Dan’s Evangelism. According to Pirahã, if you or at least people close to you haven’t experienced something, it is simply not relevant. The Pirahã show that happiness lies in small, daily activities, that the more we try to complicate the worse our lives become.

This idea was still in my mind, when minutes later I was gazing at an image of a “walnut sized” tumour on the Doctor’s monitor. The clarity and immediacy of my new situation induced a surprising peace, and even a profound happiness which has stayed with me. This feeling may go, but for now it is my new friend, enriching the present, the only moment in which I actually am living.

 

One again I awoke early to the energetic tunes of Ed Sheeran’s album “Divide” playing in my head. It must be the tempo, plus my love of his reflective lyrics, all good food for my journey.

Physio recommends a pair of Nordic poles to help me walk symmetrically.

Another beautiful morning.