Awaking today exactly a week to go before my brain surgery at Addenbrooke’s Hospital in Cambridge, I found myself reflecting on my calmness when my tumours were revealed in my cranial MRI Scan just a few week’s ago.

While awaiting the scan results, I sat and re-read the last chapter of “Don’t Sleep, There are Snakes: Life and Language in the Amazonian Jungle” by Daniel Everett, in which he describes his journey into the Amazon as an evangelistic missionary to translate the Bible into the language of the Pirahã tribe, and ultimately lost his religion.

He found “the happiest tribe on Earth” who had no interest in things outside their immediate experience, so had no need of Dan’s Evangelism. According to Pirahã, if you or at least people close to you haven’t experienced something, it is simply not relevant. The Pirahã show that happiness lies in small, daily activities, that the more we try to complicate the worse our lives become.

This idea was still in my mind, when minutes later I was gazing at an image of a “walnut sized” tumour on the Doctor’s monitor. The clarity and immediacy of my new situation induced a surprising peace, and even a profound happiness which has stayed with me. This feeling may go, but for now it is my new friend, enriching the present, the only moment in which I actually am living.

 

One again I awoke early to the energetic tunes of Ed Sheeran’s album “Divide” playing in my head. It must be the tempo, plus my love of his reflective lyrics, all good food for my journey.

Physio recommends a pair of Nordic poles to help me walk symmetrically.

Another beautiful morning.

Action

Brain operation booked for Monday July 31st, with high res scan a few days earlier. I’m delighted with progress.

Went “dancing”

Great evening. Lavinia drove me to Cambridge to go dancing with our good friends at Cambsdance. Delicious pasta meal first. Despite balance problems I managed to move around without a stick, which was a relief. So good to flex my tightened muscles. Everyone was kind. New 5Rs teacher for us: AJ, who was great.

Excising times!

Today I met the neurologist at Addenbrookes hospital, Cambridge, and he suggested (and I agreed) to surgically remove the main tumour. I will soon have another MRI to precisely define the location & shape of the tumour, followed by surgery in 2-4 weeks time. The tumour will then be biopsied to determine the subsequent treatment.

This is good progress within 15 days of my initial diagnosis. The steroids have dramatically reduced the symptoms, so I currently have reasonable mobility.

Spoke with retired medic friend at the Wedding who gave a positive spin on my situation. Good. But now I’m feeling rather bad about raising the possibility of my mortality in the hearts and minds of those I love! 😉

Felt deeply touched by the concern felt by family and friends at a most wonderful wedding.

Progress

Doc called as we drove to Kent to let me know that today’s hospital oncology meeting decided that the main tumour can be excised (and biopsied), which is good news. Meeting to discuss in 1 week.

Lovely evening with close family in Rochester Kent, beautiful full moon, balmy night.

When Time began

My New Life began mid-afternoon on July 28th when my brain scan revealed 2 tumours. Now little more than a week later I am planning with a remarkable clarity (my spreadsheet has 9 tabs already!). Vast numbers of little concerns from my past have just evaporated. It’s action time!

Today Lavinia and I are going for a long weekend in Kent, to a family wedding and reunion. It was arranged long before my New Life started, and based on the initial speed of my worsening symptoms, I was initially fearful that we would have to cancel. Thankfully the steroids have temporarily reversed matters, and I am raring to go. I’m so looking forward to a level of emotional intimacy with my family.

Life is Rich

Its a beautiful day.

Condition Update

This morning the Doc called to give me the results of my Body CATscan: There was no indication of the location of a primary tumour in my body, (and consequently no secondaries there). It may be too small to spot on the scans.

Oncology team will meet at Addenbrook’s Hospital, Cambridge tomorrow Thursday, to discuss way forward. I will receive NHS treatment at Addenbrook’s Hospital. They will decide whether to biopsy my Brain “walnut” of just go ahead with radiotherapy (and chemo?), depending on the risks.

My reaction:

Relief that I do not immediately require body surgery, and that I should not expect immediate problems from body causes.
Relief that the body scan has not revealed multiple Secondaries.

It’s a beautiful day.